ABOUT

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We are an Active Sociable Group with over 100 members. Initially set up as a Working Age Group but we now have members from age 50 to 70+.

We meet at the Mountbatten Centre every Friday morning where, you can come and have a coffee and a chat. We also have access to the Gym, where we have a dedicated Parkinson's aware trainer. The trainer sets up an exercise plan based on your ability and needs, these sessions are subsidised. We also have regular visits by our Neuro-physio therapist team.

We have a busy social calendar, archery with qualified instructors, skittles evenings, quiz nights, breakfast and lunches and many visits.

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SallyAnn Sines

CHAIRMAN

I was 48yrs old when I was diagnosed October 19th 2011 at 11.13am, I looked at the clock and this was the start of a new part of my life

I joined the group at the Coach and Horses on Saturday lunch time and was made very welcome.

My family, especially my mum found it very hard and my sister Tracey took me along to the Wednesday evening meeting to see what was involved. My sister Lorraine and brother Adrian help me out a lot and give me encouragement. My brother Robert keeps me laughing with his jokes and my nephew and nieces understand and help me when I am having a bad day.

I have enjoyed the group very much, I was treasurer for 5yrs with help from Georgina. In March 2018 I became chairman of the group which has grown a lot in the last few years and hopefully will continue to grow

My friends and members of the group have all been very supportive.

My motto is “I have Parkinson’s- it lives around my life style, I don’t live around Parkinson’s.

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Carl Alan Prior

 

I enlisted into the Royal Navy at the tender age of 16. I spent 23 and half years in the service. My time in the Royal Navy taught me many things, amongst the things I learnt to work as part of a team, expect the unexpected when encounter a problem, deal with it and move on.

All the training I had could never prepare me for being diagnosed with Early Onset of Parkinson.

After a period of 2 and half years of a lot of stress and some really bad times, there seemed to be light at the end of the tunnel. I had just sold my late mother`s flat and was emptying it of its contents, when I had a slight accident. I thought I had trapped a nerve in my left arm. I attended the local NHS drop in Centre and a nurse sad that it could be Parkinson`s. She said I should make appointment to see my GP. This was July 2014.  I contacted my GP surgery and was seen by a doctor who advised me it was possibly Parkinson`s, that I would need to see a consultant and that it could take four to six months before I would get to see one.

While at the doctors the doctor told me of the results of my blood test, which showed I was borderline type 2 Diabetic. So two bombshells in one day. All my training in the Navy never could prepare me for that news.

While waiting for my Consultant`s appointment I took the decision to start attending the local Gym. Whilst having my Gym assessment I was informed that the local Working Age Parkinson`s Group held meetings and events at the gym.

In September2014, I had my appointment with the Consultant who confirmed that I indeed have Parkinson`s. Although I was expecting it, it still was a shock and it took some time to come to terms with it. In fact I felt depressed and could not shake off this over bearing feeling of Why Me.  I decided to go to the Working Age Parkinson`s group. It was the best decision I made, I was able to speak with others who had the same problems.

In September 2015 I was medically retired from my job and suffered depression, and it has taken a while to adapt to not doing long shift patterns. I was given a lot of support by employers and looking back on it all, it was the best thing for all parties.

Two years on my Diabetes is under control and I am a lot happier knowing that I living with Parkinson`s and that I have the full support of my family and friends, and the Working Age Parkinson`s Group Portsmouth. When we meet is great to know that I am not alone and that there is always someone to talk to who knows how I feel.

Four Years on from my diagnosis. I am now living well with my Parkinson`s. I have now been voted on to the committee of the Working Age Parkinson’s Portsmouth as Vice Chairman.

VICE CHAIRMAN

 

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Tina Thompson

WELL BEING SECRETARY

My husband, Barry, was diagnosed with Parkinson's in 2008. However, it was not until 2015, when he took early retirement, due to his health, that we joined WAPP.

 

We can honestly say that it has helped us talk not only to those who have the condition, but to their families and hear how they are coping . More importantly, we have found a group of caring friends with whom we can enjoy varied social activities, skittles evenings, archery, Sunday lunches, to name just a few!

 

Why not come along to the Mountbatten Centre on a Friday morning and join us for a coffee and a chat?

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Kathy Prior

SECRETARY/MEMBERSHIP SECRETARY

I have been a member of the Working Age Parkinson`s Group Portsmouth for about 4 years.

I joined when my husband Alan who has Parkinson`s joined. It was a very difficult time for him.

At first like many who receive the diagnosis of Parkinson`s he was shocked and sometimes depressed. Supporting him has been challenging at times. Joining the group has helped both Alan and myself. Meeting others experiencing what he is going through and their carers or partners has been a God send, both dealing with the Parkinson`s and socially. The group shows people life goes on and you can still live a good life. Life does stop because of the diagnosis.

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Ian Heaphy

TREASURER

 

Hello my name is Ian,
My partner, Stella, was diagnosed with Parkinson’s in 2004 and since then both of us have been members of Parkinson’s UK at differing groups around the country. Having settled in the Portsmouth area some six years ago we were fortunate enough to find the WAPP group and both benefit from membership.

     Having volunteered with the UK Local Development Planning Group for a couple of years I chose to focus my efforts, more practically, into a vibrant, effective and caring delivery group such as the Working Age Parkinson’s Portsmouth Group.

     As treasurer I trust that my input will enhance this supportive delivery to members of this group

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   Barry Stacey

                                                                                                     EVENTS COORDINATOR

 

I was diagnosed with Parkinson's 15 years ago and it worried me. I decided to find out about my condition and what to expect, it soon became clear that there were various effects from this disease. I joined Parkinson's UK who were seeking to start a Working Age Group which would be an active group some14 years ago. I was able to give and receive support from others with my condition including their carers. This group I joined it became known as the Working Age Parkinson’s Portsmouth  (WAPP). There are many activities that we arrange weekly to support our members and carers, these activities are designed to get members involved in achieving confidence that comes from talking to fellow sufferers. Although we are known as the WAPP we do not put any age limit on our membership. If you feel that you need this type of support come and join us

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Mike Hampson

                                                                                                         Website

 

I was diagnosed the day before my 62nd birthday, the look on the consultant’s face when I did a fist pump when she told me. I had been sent from pillar to post trying to get a proper diagnosis. I saw a registrar 6 month’s earlier and he told me it was my spondylitis that was my problem. A few months later I woke up one morning and my whole body was shaking, I saw my GP and he referred me again. When my appointment came I told my wife I wasn’t going to go as I would get the same diagnosis, but she insisted I should go. I found out later that the GP that referred me also had Parkinson’s. I don’t have any visible signs so people don’t think I’ve got it.  

It was when I attended a self help group organised by our Parkinson’s nurse that I found out about this group which I now belong to.

I am a great believer that exercise is good for everyone with Parkinson’s. After doing the group archery at Fort Purbrook, with one of the members, I decided to do a beginner’s course. I now go every morning to my club, it does wear me out but after a quick nap when I get home I do feel a lot better. I think with having a good Neurologist and my archery it has slowed down the deterioration of my symptoms